Probable Behcets - treatment to start
Was told by my Dermatologist that I probably have Behcet's so have to start colchicine tomorrow. I will be taking 1 per day for the first week, 2 in the second and 3 in the third in the hope that the 3 will not cause me any problems as there seems to be a number of side-effects with this medication. It's only taken a few months for me to be (almost) diagnosed with this but I had to go through a terrible time to get here.
I went to my GP because I had a large growth on my vulva. She referred me to a gynaecologist who examined me and said it would have to be removed. I went into hospital for surgery 4 weeks later where they removed the growth and took some skin from my groin for biopsy. The doctor was concerned that it may have been vulval cancer but the biopsy was clear (thankfully) and I had to take 5 weeks off work as I was unable to sit and had to wash the area constantly and could only dry it with a hairdrier due to the stitches.
Obviously I was relieved when the biopsy didn't show any cancers but I was also angry that instead of taking a part of it for biopsy, they went to the extremes and performed surgery.
The gynae didn't know what else to do after that so I was passed to a dermatologist who I have now seen three times in the last 2 months. I've had bloods taken to rule out other illnesses/diseases and he is almost sure it's Behcets I have due to the symptoms (genital and mouth ulcers, skin lesions and the biopsy showing vascullitis). The first time he mentioned Behcets to me, I went home and googled it and couldn't believe what I was reading. A lot of the symptoms were the same as mine but the problem was that I never presented them all at the same time.
I am now looking forward to feeling a bit better 'down-below' as it's been a blinkin' nightmare but I'm hopeful that I'll get some relief soon and the colchicine won't cause me any problems. Has anyone else been on this and what was your experience with it?
Thanks for taking the time to read this